Shawn took our boys to the HTC on Thursday-- Connor's usual check up and lab work.
I got an e-mail from the HTC Nurse on Friday that she had Connor's new numbers- and to CALL HER. Oh Crap- oh jeez! Steeling myself for the bad news, I jog down the hall way at my work & duck into a closet to call since we can't use our cell phones on the floor...
I give her a call & she answers right away- uh oh, she's waiting on me... ugh.
I tell her it's me, and she launches into the current data- and it's not bad news-- it's actually fantastic!!
Hot Dawg!! Connor is finally getting 76% recovery off his 200% replacement at the 45 minute mark!!! This is astronomically WONDERFUL! And to boot, he also again has an unmeasurable inhibitor level on the BU scale.
It has been over a year since either of these has happened... we may actually be on the right road to beating this thing.
As for the unmeasurable Inhibitor-- all this means is that with current testing methods, there is no way to know exactly how much inhibitor activity there is-- but what little there is, works very efficiently. Connor has no factor left in his system when we check at the 48 hour mark, and 45 minutes after we dose to what should be the 200% level, he only has 76% remaining... it doesn't take much to do the damage.
20090328
Spring Colors.. and I don't mean the flowers!
So it's been quite some time since I updated this blog- the boys are now nearing 3 and a half years old. Potty training (OMG I wanted to put them in the back yard with no pants- but it was WINTER!) is nearly finished, and we're on to the next step, whatever that may be.
It is also Spring- that time of year when Mother Nature has menopause issues and it can be warm one hour and freezing cold the next. This past weekend was one of those- and I woke up with a budding Migraine headache. I asked Shawn to please take the boys outside for a half hour so I could get a shower in peace, this being around 11 a.m.
I commenced showering, and then on to puttering around the house. Then as time advanced, I moved to working on the kitchen, (headache has been resolved by this time) and getting snacks since Cousin Joey, Grandmom and Aunt Liz has shown up.. everyone is in the back yard but me!
All the boys are climbing, chasing & creating general toddler mayhem in the unseasonably warm spring day- getting the crazies out since the next couple days are promised to be frigid and icky.
The kids are playing, Shawn is doing yard work- and I am having blissful housework time to myself.... yes, I did say blissful.
No naps today, or atleast the normal form- but about 4:30 (I love that man of mine- my half hour turned into the whole day!) the various relatives leave and the boys come inside to get cleaned up and rest up a little- and Tyin passes out at 5pm. He wakes up at 6 pm quite grumpy and unhappy and limping a little.
Now on to the title of this post- Thankfully this is Factor day-- Shawn is already mixing the vials when Tyin wakes up... (Connor never did take a nap- he passed out during factor! LOL)
Tyin said he has an Owie- and I sit him down and try to figure out where he is saying he has one... Tyin eventually gets his point across when I manage to grab the hurting spot as I am trying to inspect his appendages... OW Mommy- your squising it! It is a bruise forming on his lower shin just at the ankle level but not the ankle. It's already a pretty good size- about the length and width of my thumb- and showing that blue color of a growing bruise- and a goodsize lump that most hemo-families are familiar with.
"Oh Crap" I exclaimed- and Shawn, without missing a beat replied "Double dose then?"
Later on, after factor and tylenol- I overheard a conversation between Connor and Tyin.
Tyin: "Connor, I gots a booboo."
Connor: "Let me see it Tyin..." (Tyin raises his pants leg to display said booboo)
Connor: "Wow Tyin, thats a good one!" "I gots a booboo too..."
Tyin: "Let me see it Connor.." (Connor hikes his pants leg to show his knee bruise that is a few days old and changing colors)
Tyin: "Nice colors Connor!"
Oh the fun of being a mom, and of having boys-- and the interesting twists you have in a bleeder house.
It is also Spring- that time of year when Mother Nature has menopause issues and it can be warm one hour and freezing cold the next. This past weekend was one of those- and I woke up with a budding Migraine headache. I asked Shawn to please take the boys outside for a half hour so I could get a shower in peace, this being around 11 a.m.
I commenced showering, and then on to puttering around the house. Then as time advanced, I moved to working on the kitchen, (headache has been resolved by this time) and getting snacks since Cousin Joey, Grandmom and Aunt Liz has shown up.. everyone is in the back yard but me!
All the boys are climbing, chasing & creating general toddler mayhem in the unseasonably warm spring day- getting the crazies out since the next couple days are promised to be frigid and icky.
The kids are playing, Shawn is doing yard work- and I am having blissful housework time to myself.... yes, I did say blissful.
No naps today, or atleast the normal form- but about 4:30 (I love that man of mine- my half hour turned into the whole day!) the various relatives leave and the boys come inside to get cleaned up and rest up a little- and Tyin passes out at 5pm. He wakes up at 6 pm quite grumpy and unhappy and limping a little.
Now on to the title of this post- Thankfully this is Factor day-- Shawn is already mixing the vials when Tyin wakes up... (Connor never did take a nap- he passed out during factor! LOL)
Tyin said he has an Owie- and I sit him down and try to figure out where he is saying he has one... Tyin eventually gets his point across when I manage to grab the hurting spot as I am trying to inspect his appendages... OW Mommy- your squising it! It is a bruise forming on his lower shin just at the ankle level but not the ankle. It's already a pretty good size- about the length and width of my thumb- and showing that blue color of a growing bruise- and a goodsize lump that most hemo-families are familiar with.
"Oh Crap" I exclaimed- and Shawn, without missing a beat replied "Double dose then?"
Later on, after factor and tylenol- I overheard a conversation between Connor and Tyin.
Tyin: "Connor, I gots a booboo."
Connor: "Let me see it Tyin..." (Tyin raises his pants leg to display said booboo)
Connor: "Wow Tyin, thats a good one!" "I gots a booboo too..."
Tyin: "Let me see it Connor.." (Connor hikes his pants leg to show his knee bruise that is a few days old and changing colors)
Tyin: "Nice colors Connor!"
Oh the fun of being a mom, and of having boys-- and the interesting twists you have in a bleeder house.
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