I think that maybe it should be a requirement for a pediatrician to have a young infant in the house at least once a decade to continue practicing on that age range!
And they should have to have two infants in one bedroom in order to give advice to the parents of that same situation!
Put the boys down in a staggered bed time and let them go to sleep in their cribs-- stupid doctor doesn't think!! Put one down and he will go to sleep-- bring the other up an hour later to let him put himself to sleep and you will wake the other one... DUH!
Maybe we can try them at the same time... ugh.. this is going to be fun.
20060910
20060830
The Joys of Boys :0)~
It's a beautiful thing-- getting some really good toys second-hand for one hell of a discount, and having both Tyin and Connor agree with me that they are really good toys!
I wasn't going to get them-- but as Shawn pointed out, they were about 40 dollars less than the store price... and sure- there were peices missing. But for some, we can get the replacement parts... and for the other, well- it doesn't seem to be stopping them from enjoying the thing! (toys being mentioned are fisher price-- a standy thing that has curtains to crawl through and plastic pipes to hang or bang on, and some ball thing that is really cool once I get the balls again. The balls have things to look at inside them and the ball thing is a roller coaster thingy-ish for the balls)
We can always decide later to go pick up the full price brand new versions when we can get the money- but for now the boys have things to hold on to and stand while playing... and that has them THRILLED!
Life is good--
I wasn't going to get them-- but as Shawn pointed out, they were about 40 dollars less than the store price... and sure- there were peices missing. But for some, we can get the replacement parts... and for the other, well- it doesn't seem to be stopping them from enjoying the thing! (toys being mentioned are fisher price-- a standy thing that has curtains to crawl through and plastic pipes to hang or bang on, and some ball thing that is really cool once I get the balls again. The balls have things to look at inside them and the ball thing is a roller coaster thingy-ish for the balls)
We can always decide later to go pick up the full price brand new versions when we can get the money- but for now the boys have things to hold on to and stand while playing... and that has them THRILLED!
Life is good--
20060824
Nothing is routine anymore.
Yesterday, we had two little boys in to the infusion clinic so that we could get a blood test done because Tyin has developed antibodies to the factor we give him.. it is called an inhibitor-- and since it runs in the genes too, Connor had to get tested as well. This afternoon, my mom-in-law called me to tell me that Tyin's arm was "puffy" and a bruise was forming where there wasn't one from yesterday to most of today. I came home to take him to the hospital to check the bruising out-- he has been admitted overnight to keep an eye on his arm. Daddy is there with him, which is a comfort to him as well as me-- as I am at home with Connor. (Connor still nurses at night and doesn't do well if I am not here.. Tyin and Daddy have that same very strong bond but minus the nursing.)
They aren't jumping to treat the bleed-- bruising, they are basically wrapping it and checking it every couple of hours to make sure that if it is staying the same, they aren't giving him the medication that is causing the inhibitor-- and if it gets worse, they will treat it with another medication that takes more doses, but isn't ideal for the job at hand- and can cause it's own problems... From what I was told by the doctors while Tyin and I were there- there is even a chance that if it doesn't get worse, they won't treat with factor at all, but let him go home... but for now, our little family is split with them there and us here.
I hate not being able to bring Tyin's brother down there and spend the night together! I understand intellectually the reason for keeping an infant out of a hospital when he is not needing to be there- but it is hard otherwise to understand that we have to keep us apart to protect the one not having the bleeding episode from the germs in the hospital.
It is going to be hard when Tyin goes in for his port surgery... for that same reason.
Tyin is going to be fine- he is still my bouncing baby boy- even with this happening. This is very heartening to the doctors-- it shows that this is not a joint bleed, but instead--- it is a soft tissue bleed. Did I mention that this was from the blood test yesterday??
Well-- I am almost cross-eyed with tiredness, and I need to try and sleep so that I can get up at the Butt Crack of Dawn and go back down to the hospital and bring clothing to Shawn so that he can go to work. Hopefully we can all be home and together tomorrow afternoon. I sleep like crap when I have the bed to myself.
ttfn
c
They aren't jumping to treat the bleed-- bruising, they are basically wrapping it and checking it every couple of hours to make sure that if it is staying the same, they aren't giving him the medication that is causing the inhibitor-- and if it gets worse, they will treat it with another medication that takes more doses, but isn't ideal for the job at hand- and can cause it's own problems... From what I was told by the doctors while Tyin and I were there- there is even a chance that if it doesn't get worse, they won't treat with factor at all, but let him go home... but for now, our little family is split with them there and us here.
I hate not being able to bring Tyin's brother down there and spend the night together! I understand intellectually the reason for keeping an infant out of a hospital when he is not needing to be there- but it is hard otherwise to understand that we have to keep us apart to protect the one not having the bleeding episode from the germs in the hospital.
It is going to be hard when Tyin goes in for his port surgery... for that same reason.
Tyin is going to be fine- he is still my bouncing baby boy- even with this happening. This is very heartening to the doctors-- it shows that this is not a joint bleed, but instead--- it is a soft tissue bleed. Did I mention that this was from the blood test yesterday??
Well-- I am almost cross-eyed with tiredness, and I need to try and sleep so that I can get up at the Butt Crack of Dawn and go back down to the hospital and bring clothing to Shawn so that he can go to work. Hopefully we can all be home and together tomorrow afternoon. I sleep like crap when I have the bed to myself.
ttfn
c
20060815
One up, One down-- and I am cross eyed with need for sleep...
Well, it's another normal night. One boy up and babbling Dadadadadada and getting pissy with me for having him in the pack-n-play and he is tired but fighting it.. One boy is down and has been for about an hour now.. (or is it an hour and a half?) When the one who is awake goes down, it will probably be an hour and then the other one will wake and it will start again...
the joys of motherhood... I wouldn't trade it for anything, but I am really looking forward to getting my sleep back.
Connor has three teeth, he has been having fun trying to keep one or two steps ahead of his Older Twin- Tyin. Tyin has two teeth, and is skating on thin ice where nursing is involved. Those teeth are sharp! Thankfully, he doesn't bite when he is sleeping and wakes to nurse.
Connor is currently pulling himself up and standing for long periods of time... I am trying to not look at him right now, beside me in the pack and play-- if I don't see him, or if he doesn't see me seeing him, he can keep himself entertained....
Tyin is learning to pull up, but thanks to the Hemophilia and an underpadded part of our couch, Tyin now looks like a little Klingon. He bruises so much more than his Little Brother.. it actually made me ask if the doctors had an accurate diagnosis on both boys.
When the swelling on his head goes down, we will be putting both boys in soft helmets indoors until they are more sure on their feet.
Still looking for leads on grantwriting, and still trying to find something I can do from home to bring in the cash... besides tupperware.
I really want to work from home so I can be here for them, I am worried about them and how they are getting older and I am not able to be here to see them discover the world around them... and I am worried about my m-in-law and her ability to take care of them plus a new baby this next month from my s-in-law...
but we need to cover the bills & the mortgage, and I need to have my own pay check as much as possible-- just to know I am not freeloading.
but I am working on it all- and I hope to post something more positive here soon.
the joys of motherhood... I wouldn't trade it for anything, but I am really looking forward to getting my sleep back.
Connor has three teeth, he has been having fun trying to keep one or two steps ahead of his Older Twin- Tyin. Tyin has two teeth, and is skating on thin ice where nursing is involved. Those teeth are sharp! Thankfully, he doesn't bite when he is sleeping and wakes to nurse.
Connor is currently pulling himself up and standing for long periods of time... I am trying to not look at him right now, beside me in the pack and play-- if I don't see him, or if he doesn't see me seeing him, he can keep himself entertained....
Tyin is learning to pull up, but thanks to the Hemophilia and an underpadded part of our couch, Tyin now looks like a little Klingon. He bruises so much more than his Little Brother.. it actually made me ask if the doctors had an accurate diagnosis on both boys.
When the swelling on his head goes down, we will be putting both boys in soft helmets indoors until they are more sure on their feet.
Still looking for leads on grantwriting, and still trying to find something I can do from home to bring in the cash... besides tupperware.
I really want to work from home so I can be here for them, I am worried about them and how they are getting older and I am not able to be here to see them discover the world around them... and I am worried about my m-in-law and her ability to take care of them plus a new baby this next month from my s-in-law...
but we need to cover the bills & the mortgage, and I need to have my own pay check as much as possible-- just to know I am not freeloading.
but I am working on it all- and I hope to post something more positive here soon.
20060728
a little something for a weekend with no children :0)
This is a wonderful drink! It was a SMASH at my wedding, where several partners were suddenly in trouble with their mates....
(it's true, I have it all on video! )
If you don't substitute anything, it is hardly possible to taste the alcohol... and that is just the way I like it.
Just a thought, if you have an icee maker, it would be very nice as a slurpee.
Enjoy!
(Click on the title... lol, took me a second to figure that out!)
and yes, This is That Dave Jackson! hehehehe
(it's true, I have it all on video! )
If you don't substitute anything, it is hardly possible to taste the alcohol... and that is just the way I like it.
Just a thought, if you have an icee maker, it would be very nice as a slurpee.
Enjoy!
(Click on the title... lol, took me a second to figure that out!)
and yes, This is That Dave Jackson! hehehehe
blogging 101... or lower?
I can't believe I have had so many problems with getting back to this part so I can put a few things here!! LMAO
Well, lets put a few new things here:
Both of the boys are down for the early morning nap and I am trying to get a list together so we can pack for the camping trip we are finally taking them on.
It's funny how the term "Camping" can evolve over time... growing up we lived in such a mess, (lo-o-ong story here) that camping was just an extension of our "NORMAL HOME LIFE".
I also was a bit of a "camping snob" when I got older... if you weren't tent camping and sleeping on the ground-- it wasn't camping!
Ok, Ok-- like I said, the term has changed, evolved if you will.
We are going to a KOA kampground and staying in a KABIN. (Don't you just love the kutsie spelling??)
It is pretty bare bones, but it has AC!!!!!!!!
When we first started camping in a campground, I would say-- This isn't camping- it's spending a weekend in a trailer park! Now, having realized that I can still cook out and enjoy hiking and the rest of it all-- and still have a cover over my head that Won't Leak in a sudden shower, and has AC (!!!!!!!! YAHOO!!!!!!!!) and a hot shower and a flush toilet.... (hey, running water wasn't in the home a lot of the time growing up... neither was the flush toilet & bathroom!) well, I have decided I really like this version of camping.
And to heck with sleeping on the ground! My back appreciates a mattress!
Anywho- I probably have to take my oldest twin to the doc's to have his elbow checked out before we go... he has hit it and bruised it pretty good and has already gotten Advate Factor for it to make it better- but we just want to make sure it is ok before we take him out of state. It really is kinda like camping in the back of beyond where Hemophilia is involved. We don't want to have to take him to a new hospital where they don't know crap about bleeding disorders and have to train them on our kid... it just wouldn't be right.
Well-- have to go get dressed and start a paper list so I can keep on track.. if I can keep ahold of the darn list. ( I can't wait until I can get more than 2 hours sleep at a time and start thinking and remembering again!)
ttfn
C
ps-- want to know more about Hemophilia type A, severe? try these links (or copy & paste in case I screw the links up.)
http://www.hemophiliagalaxy.com
http://www.hemophilia.org
Well, lets put a few new things here:
Both of the boys are down for the early morning nap and I am trying to get a list together so we can pack for the camping trip we are finally taking them on.
It's funny how the term "Camping" can evolve over time... growing up we lived in such a mess, (lo-o-ong story here) that camping was just an extension of our "NORMAL HOME LIFE".
I also was a bit of a "camping snob" when I got older... if you weren't tent camping and sleeping on the ground-- it wasn't camping!
Ok, Ok-- like I said, the term has changed, evolved if you will.
We are going to a KOA kampground and staying in a KABIN. (Don't you just love the kutsie spelling??)
It is pretty bare bones, but it has AC!!!!!!!!
When we first started camping in a campground, I would say-- This isn't camping- it's spending a weekend in a trailer park! Now, having realized that I can still cook out and enjoy hiking and the rest of it all-- and still have a cover over my head that Won't Leak in a sudden shower, and has AC (!!!!!!!! YAHOO!!!!!!!!) and a hot shower and a flush toilet.... (hey, running water wasn't in the home a lot of the time growing up... neither was the flush toilet & bathroom!) well, I have decided I really like this version of camping.
And to heck with sleeping on the ground! My back appreciates a mattress!
Anywho- I probably have to take my oldest twin to the doc's to have his elbow checked out before we go... he has hit it and bruised it pretty good and has already gotten Advate Factor for it to make it better- but we just want to make sure it is ok before we take him out of state. It really is kinda like camping in the back of beyond where Hemophilia is involved. We don't want to have to take him to a new hospital where they don't know crap about bleeding disorders and have to train them on our kid... it just wouldn't be right.
Well-- have to go get dressed and start a paper list so I can keep on track.. if I can keep ahold of the darn list. ( I can't wait until I can get more than 2 hours sleep at a time and start thinking and remembering again!)
ttfn
C
ps-- want to know more about Hemophilia type A, severe? try these links (or copy & paste in case I screw the links up.)
http://www.hemophiliagalaxy.com
http://www.hemophilia.org
20060722
First one's a charm?
Ok-- I have absolutely no clue as to what I am doing here. If I am lucky to ever find this page again, I may even write more... I am trying to see what I can customize on this site and in order for it to let me check the changes out, it told me I had to write something. I decided to actually write instead of taking the "lawful evil" path and going literal.
now I am off to see what changes I can make.
now I am off to see what changes I can make.
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